If you or a loved one has been diagnosed with epilepsy, you probably have a lot of unanswered questions. Educating yourself and those around you about epilepsy, how to cope with seizures in everyday life, and all of your treatment options is the best way for you and your family to adjust to a diagnosis of epilepsy or seizure disorder.
We provide convenient and easy access to information about epilepsy/seizure disorders and related issues. Our goal is to provide you with answers to as many questions as possible, and with the information you need to cope with epilepsy and how it may be affecting your life.
Each year we host annual conferences and mini conferences in multiple locations in western and central Pennsylvania. These events are designed based on feedback from the epilepsy community, which determines which topics are most important to individuals and families impacted by epilepsy. Most of these events are either a full or half day in length, and, when possible, we strive to make on-site child care available to attendees. Although there is occasionally a suggested donation for these events, that can be waived for any family that requests financial assistance. These conferences provide an opportunity for individuals and families to gather information and hear experts address a variety of issues related to epilepsy. From senior citizens and seizures to pediatric epilepsy syndromes, legal rights of people with epilepsy, and new treatments, these annual conferences bring you the most up-to-date and useful information available on epilepsy. These events are listed in our newsletter, or you can check our event listing to see when the next conference or mini conference is happening near you. If you have suggestions for topics for future educational events, please contact us.
Each year, we plan and organize a variety of community workshops and lectures. These events are held in various communities throughout western and central Pennsylvania. Typically held on a Saturday morning or during a weekday evening, these events bring experts from the medical community, legal sector, or other community organizations to share their knowledge. You will have a chance to ask questions, learn more about a specific topic, and hear a fresh perspective from a professional. These events are listed in our newsletter, or check our events page for the current schedule of local educational events.
We are always looking for ways to pair educational events with a chance for families to have fun and meet others families who are similarly impacted by epilepsy. The Gateway Clipper Cruise is an annual event for adults with epilepsy and their families that takes place in the fall. A local neurologist provides up-to-date information about epilepsy treatment options while attendees enjoy a buffet luncheon. After the presentation, there is time for socializing and sightseeing.
For teens living with epilepsy, there are many aspects of transitioning into adulthood that can feel overwhelming. We provide assistance to transitioning teens through a couple of annual events:
Held each spring in Harrisburg, this weekend program is for youth, ages 14-21, with a diagnosis of epilepsy/seizure disorder and a desire to build personal and leadership skills. Youth participate in leadership and skill building sessions throughout the weekend. At the end of the summit, each participant presents what they learned and their goals for the future.
The Take the NEXT STEPS Conference is for youth, ages 14-21, with a diagnosis of epilepsy/seizure disorder and their parent or guardian. This conference helps the youth and parent navigate the journey of healthcare transition together. Attendees participate in large group skill-building sessions as well as small group break-out sessions throughout the weekend. The location of this conference moves from year to year, within western and central Pennsylvania.
Each spring, families from across the state gather in Harrisburg for our Share Your Story/PA Public Policy Conference to learn how to advocate on behalf of all Pennsylvanians living with epilepsy. Learn more by visiting our Raise Your Voice page.